Fundraiser for Ava

Ava’s Story

From Ava’s Aunt

Ava is 21 years old and has been fighting an excruciating battle after being diagnosed with gastroparesis in 2021. Her case is very severe, and she has been through so much more than can even begin to be shared in a couple paragraphs. Some of what Ava has endured/is enduring include: placement of a gastric pacemaker; g-poem surgeries; TPN feedings through a pic line for 11 months; multiple surgeries/procedures on her pyloric sphincter. As her condition deteriorated, it was necessary to have a J tube placed (which goes directly into the small intestine) through which she is now receiving slow feeds 20 hours per day, along with IV medications and hydration through an additional port. These come with a high risk of infections, and Ava was just released from another hospitalization after battling sepsis from a blood infection for a second time. Since April, Ava has been hospitalized 6 times with life threatening issues stemming from complications from gastroparesis.

Ava’s team of doctors have determined that there is nothing more they can do for her and she requires a specialized level of care at The Cleveland Clinic. She is nowhere near medically stable enough to travel by car or commercial airline. The only travel option to Cleveland that can provide the level of care she requires is an air ambulance. The cost is $39,920 one way, for a total cost of close to $80,000. They will incur many additional costs, including lodging, car rental, etc. Their insurance company has not approved coverage, nor will they give them any information as far as a date for reconsideration. The flight cannot take place without being prepaid.

For anyone who has ever been in a similar situation, I’m sure you grasp how hard it is to reach out for this kind of help, and this request comes after searching every other possible option. We love our sweet, kind, brave Ava, and humbly ask for any support you feel called to give Ava and her family. It will be endlessly, deeply appreciated.

If you would like to donate and are unable to attend a class, this is the direct link to Ava’s GoFundMe https://gofund.me/be9e3a7d